Sarah Rise Weekly Updates

Trick-or-treating went well. It wasn’t too cold and the sun was even shining when the girls started out. Amy went with some friends of hers and Sarah went with Anna. Carl and I stayed at home to hand out candy, realizing how little we were needed as parents at that moment. Everyone was well all… Read more »

Happy Halloween! Tonight we will have one house, two sorceresses, and one intersection walk sign that changes color and flashes. Carl’s costume, that he made, is the walk sign and Sarah absolutely loves it. When she first saw it she held it against herself, said she was a walk-sign robot, and said, “beep boop beep… Read more »

We are enjoying a wonderful weekend with Mom-Mom and Pop-Pop. There have been Conversations with Mom-Mom, where Sarah and Amy play with Mom-Mom in her room. Sarah, sometimes known as Door, falls and breaks her nose and needs the aid of Dr. Mouse, also played by Sarah. Speaking of doors, Carl and Sarah went to… Read more »

Surrounded by the silent cacophony of my own judgements about my feelings, I cease to notice them as optional. Inspired by Glennon Doyle’s encouragement to not abandon myself, I have started to notice when I condemn my reactions and to stop the condemnation and start accepting the feelings as rational. For example, yesterday had some… Read more »

Sarah is the most talented and ever-surprising namer of herself and others. This week she called me “Mama Circle-With-A-Line-Through-It” and dubbed herself the same, just as the baby. Amy has been roller-skating a up a storm, and changing her plans for her Halloween costume as rapidly as those roller skate wheels spin. She is alternately… Read more »

We are enjoying a wonderful visit with Grammy and Granddad. On our drive to meet them at our mountain house we had a short phone call on speaker phone. As Carl and I said our goodbyes, from the back seat two voices chimed in with, “Meow!” and, “Musical note!” It was adorable. The only trouble… Read more »

This past week felt extremely packed from Monday through Thursday. I felt like I was barely keeping up with what needed to happen, barely breathing, barely staying afloat. What is always an odd juxtaposition with that feeling is that when I’m actually teaching or giving a massage then I’m not stressed or feeling time pressure…. Read more »

Sarah’s EEG has been read but her neurologist wants to consult with other epileptologists before giving his suggestions to me. He thinks Sarah’s moments of waking with a start may be seizure related. The results that came from whomever read her EEG also indicate that they are possibly seizure related. Even though that confirms my… Read more »

We are still waiting to hear from the neurologist about Sarah’s EEG. It has been almost two weeks and that is the time frame I was told to expect. Her sleep this past week has been better overall with fewer times of waking with a start. Most nights she still comes into my room around… Read more »

I forgot that today was Sunday! Since it is a long weekend, today really feels like Saturday. Thus the later-than-usual update. This week has not involved a great amount of sleep. Sunday night after dinner Sarah wasn’t to have any food. After 3am she wasn’t to have any water. I slept lightly, on alert for sounds of her getting… Read more »