Sarah Rise Weekly Updates

Mother’s Day was a marvelous experience that required great restraint on my part not to fall into old habits of cleaning the kitchen. After we all got our own breakfasts, I was not to cook or clean. Sarah made sloppy joes (making the sauce from scratch) for lunch with some help from Carl. Amy made… Read more »

Thank you all for the love and support about my stepfather’s death. My mom wrote a beautiful obituary that really captures his spirit and impact. It has been interesting to move through grief a second time in so short a span of months. The sadness about Ralph passing didn’t hit me much until I got… Read more »

Yesterday I drove to Philadelphia to be with my mom as it seemed like my stepfather, Ralph, was close to death. He passed this morning with his daughters, my mom, and me with him. I’m glad I followed what felt right to my body to come out yesterday. Ralph was a part of my life… Read more »

Sarah had an exciting Monday visiting Duquesne University where she will attend a post-secondary program next year. Then she thoroughly enjoyed having themed dress-down days Tuesday through Thursday. Friday she did not have school because they give everyone the day to get ready for the prom. Our preparation included a long nap and an errand… Read more »

After months of rehearsals and running lines at home, Sarah’s acting class performed an abbreviated rendition of Mary Poppins. Sarah was amazing!! The class is for actors who love to sing, dance, and act and need a little assistance to do so. Last year Sarah had two short lines in her play and was absorbed by… Read more »

The itinerary for my trip with Amy had only the barest details of our flights, where we were staying, and “Do fun things. Eat chocolate.” I should have added “walk all over creation” because we certainly got our steps in, but we made good on our primary intention. The week felt like it went by… Read more »

Sarah and Carl had a wonderful time on the rest of their Disney Cruise. They spent a relaxed time by the pool while Disney movies played on a big screen on the deck, and the next day had plenty of time after disembarking to go to the Museum of Science and Discovery to see turtles,… Read more »

I was recently asked what autism awareness meant in my household. I said it meant listening to “Love Shack” any time we drive anywhere, usually multiple times. Of course it is more than that, but I also feel like that is a true encapsulating nutshell of the family flexibly supporting Sarah’s love for the song,… Read more »

If you know Sarah well then you know that the most important thing when arriving at a concert venue or gift shop of any sort is to buy a t-shirt and find a place to change into said t-shirt. Last Sunday we donned the personalized Peppa shirts I got us at Christmas and went downtown… Read more »

Just after I wrote my update a week ago, our power came back on! It is always interesting how quickly I go back to taking anything for granted when it works the way it should. Friday night I mysteriously tweaked my knee as I rolled into bed. I couldn’t straighten it or put weight on… Read more »