Last Sunday Amy and I returned from feeding a friend’s cats a mere two minutes before a massive rain storm hit. We were blissfully unaware as we walked home, knowing there was some thunder rumbling and some early drops falling, but not knowing torrential rain and hail was imminent. As soon as it did pour,… Read more »
Sarah Rise Weekly Updates
June 13: Vaccines, Mud, and Judgement Crap
Last Sunday Sarah helped Carl make dinner. Yesterday she made a water smoothie by filling our Vitamix with water and blending it to make sure there were no lumps. I do hate lumpy water, don’t you? Sarah received her second Pfizer shot on Wednesday and was at low ebb with a fever on Thursday. Thursday… Read more »
June 6: A Miraculous Discovery, and Baby Uh-Oh is a Rising 7th Grader
I’m writing later in the day than usual because the kids had a sleepover at Anna’s last night, so Carl and I went out to dinner at a restaurant!! We were outside, but this was the first time in over a year and a half. This morning we went out to breakfast at a place… Read more »
May 30: Impeccable Timing and Large Scoops of Chocolate
Sarah likes to create delicious ice cream sundaes with loads of chocolate chips on top. Sometimes she goes a bit overboard. Carl and I suggested that she use a small scoop that would help with getting a reasonable portion. Sarah proceeded to select a scoop… the 1 cup measuring cup! That is bigger than her… Read more »
May 23: Cooperative Games and Earnest Songs
We are back to in-person Sarah-Rise sessions with Sc!! These session include Amy, as they have for years. It is beyond wonderful to have Sc in person even though the FaceTime sessions were impressively effective. Last Tuesday they spent the whole time outside with sidewalk chalk, cauldrons, and brooms. Last Sunday Sarah participated in a… Read more »
May 16: Funny Sarah Moments and Sarah’s Best Friend
Imagine if you will… I calmly tell Sarah that I have a question and if the answer is no that is totally ok and I will respect her wishes. “Could I wash your musical note shirt and pajama pants that you have been wearing for a long time? You could wear the matching shirt.” Instead… Read more »
May 9: Warming What Is Cold and Reconnecting to How I Want to Be
One morning Sarah came to breakfast, sipped her hot chocolate, and said, “I’m going to heat it up a little bit. It’s not very warm at all.” I’m not sure why that was so endearing, but it was. Something about all of her little word choices that made up such a complete expression. Another day,… Read more »
May 2: In-Person Visits and Academic Achievements!
We are in the midst of a wonderful in-person, unmasked visit with Grammy and Granddad! This is the first time we have seen them in person since Christmas 2019!!! I am already sad about the visit being over even though it isn’t quite over yet. Yesterday we completed a jigsaw puzzle with many cats, with… Read more »
April 25: Coming in Close to Big Emotions
I have been experimenting with really coming in close to Sarah when she gets upset. I don’t always have the mental or emotional space within myself to do this, but when I do it seems helpful. I verbally acknowledge what Sarah is feeling and say that those feelings are ok. Sometimes she gives a quiet… Read more »
April 18: A Seizure and A Notable Moment of Calm
Last Sunday night, Sarah had the first seizure she has had since being on anti-seizure medication. The first seizure in roughly two years. It lasted less than a minute and she was mostly herself afterwards except for having a headache. Her neurologist increased the dose of medication so I’m hopeful things are back under control…. Read more »


Recent Comments