Sarah Rise Weekly Updates

May 12

It seems that I was mistaken about my cluster headaches being done. I’m on my second round of prednisone now and hopefully this will do the trick. I continue reading the book about how to change my life experience so I don’t get headaches, but I am much more capable of paying attention to anything… Read more »

May 5

Snuggly school mornings have continued to go well. Now we just need to figure out a solution for hair-washing. We only do it once a week for the girls, but now Sarah clearly needs it twice a week. Almost always, the process involves lots of screaming and resisting. This is true whether we allow for… Read more »

April 28

When I was away in England, Carl experimented with changing how he did things for Sarah’s school mornings. Usually I would turn on the hall lights every five minutes for 20 or 30 minutes and Sarah would scamper out to turn them off, saying she was the light bandit. Usually this was fine and she… Read more »

April 21

I had a tremendously wonderful time in London with my friend. We walked and talked and ate good food. We had a tour of the Globe theatre followed by tea. By “tea” I mean the tower of sandwiches and scones and mini desserts in addition to the actual beverage. We saw many birds, including some… Read more »

April 14

There are so many things that advise seizing the day or the moment, not putting things off, following your dream, doing the thing that your heart and soul are telling you that you must do…. Usually I can’t think of what my thing would be. Being in England for my second post-graduate session with Bruce… Read more »

April 7

This past Tuesday was Autism Awareness Day and I shared on social media about how far Sarah has come, largely thanks to the Son-Rise Program. We have done many different things to help her over the years and SR was by far the best thing we have ever done. She has come farther than I… Read more »

March 31

We don’t see the accumulation of the need to rest and rejuvenate the way we see piles of laundry. We may feel the need to do nothing, but so often it gets put off as the reward that will follow finishing the visible piles of somethings. The problem is that the visible piles never really… Read more »

March 24

Some moments are so perfectly wonderful… this morning we woke to hearing Amy warning Sarah not to step where there was water on the bathroom floor. Sarah said she wouldn’t step in it. Amy slipped in it. Sarah asked if she was ok. I just love it so much when they have easy, seemingly grown-up… Read more »

March 17

Sarah has yet another new swim teacher and the first session went well. For Sarah’s last two lessons she has really been wanting to do things independently so I see a glimmer on the horizon of her being ready to move to the next level. She just has to jump in by herself without needing… Read more »

March 10

Sarah had her school sock-hop so she got to wear her plaid dress, pink jacket, cats eye glasses, and the nail polish her classmates sent home. She had a great time. Amy’s class was celebrating Dr. Seuss and Read Across America so she had various ways to dress each day. My favorite is always mismatch… Read more »